Do you have a choice?

Life is about choices sometimes. If you are lucky enough, you get to choose a better one, will we end up the same just like the movie 'sliding doors'? but do we always have a choice? Nope, we don't sometimes. Can we choose our parents, siblings or relatives? haha, I am lucky enough to have good ones for all.

Jia Kenn's doctor once told me that I am the one making options for him, he did't get to choose for himself. It's 'parents' who decide the son's ability, especially for special needs, he didn't get to choose at all for now! But he didn't also choose himself to be cerebral palsy in the first place?? Was he given a choice in the first place?

Anyway, in other words, my decision is very important for the growth of my children. I am just confused with the options available for JK now, with limited time allowance, I need to work out the best for him. The question is: what's the best for him? I am puzzled. Glen Doman, NeuroSuit, Chinese herbs ....etc. you name it! Everyone is telling me all sorts of things!!

I hope what we have been doing for Jia Kenn is on the right path, be persistent, tough and consistent. Have faith in ourselves :) Out of no-choice, we will make miracles!!

NeuroSuit Therapy...yes or no?

We are rather undecisive on the neurosuit therapy for Jia Kenn, after much consideration in terms of costing and its reliability, hmmm...... chances are we would give it a 'GO' !

Okay okay, maybe we are desperate or frustrated, we must be re-energized and injected with more confidence to start on the new thing on him! Looking at how JK was crying over the suit and the stretches he had to encounter during the examination by the neurosuit therapist, we really want to know how amazing the suit can be though it's still not 100% catching our confidence at the moment. On the other hand, i wonder how's JK's pal doing, little Ridhwan who went for the same try-out.

Our sweet little boy is still having lots of problems with his volunteered movements, with the aid of the suit, I really look for miracles on him! Let's keep our positive energy ON and fingers crossed too!!!

Our little achievement!

This is so encouraging to see Jia Kenn holding a bottle on his own, it may only last for minutes though, it is already so motivating for us! At least he tries with his own hand you see... On top of that, Jia Kenn can hold up his head and sit for a little while, we have timed him, max is 1 minute!! so great to see that! There's still a long way to reach balancing anyway!

Let's look for more improvements to come soon!

命里有时，终须有， 命里无时， 莫强求

The journey of my parenthood has always challenged me with guilt, pain and incredible responsibility towards my children, especially on little Jia Kenn. As I continue to support a more fruitful life for my children, that has more often left me with frustration and emotional drained. However, something has changed me in a couple of days ago.

As a spiritual path I believe in God's work and how he has chosen us to be parents of a very special child. Our life expectancy leaves many unanswered questions all the time. I always question myself about Jia Kenn's future. However, an incidence has changed my mind, my love for both my sons will only be on accumulative basis, just leave the questions be unanswered, be it favourable or otherwise. I will love Jia Kenn the way he is and I will enjoy being a dedicated mother and not to stress myself by having too many questions. Our life can be very fragile and unpredictable. I wouldn't want to plan for the unplanned but to work my best. Thanking all the medical professionals who have saved my sons , especially JK who was very critical, and brought us joy in life. Our boys complete our life.

Our Little Fighters!

Our little Jia Kenn loves swimming!! It's been couple of months since Jia Kenn started going for aquatic therapy. With strong belief in early intervention program, we have finally got Jia Kenn accepted into spastic centre to ulitise the heated pool.

After months of familiarisation, this little boy started playing with water now. I couldn't describe how playful he could get sometimes and intolerable too at times. To our consolation, he could lift up his head better in the water now. We aim to get him more flexible in the water, apparently, it's believed that warm water can break spasticity. He's still fighting for it! Take a look at the fighter's pictures!

On the other hand, Eu Kenn is gradually getting more understanding now. He likes to fight for all the toys especially when the brother is playing with it. This has added a new episode in my parenthood. See, he has won over the little car from jeh jeh! Fighter 2.
















Here they are the two little fighters! Though they are growing in two different directions, I believe their hearts are always together! What else is new, they shared the same tummy before coming to this world!

Determination

To be honest, our determination on acupuncture is fading off a little day by day. We have not seen any drastic change in little JK. This is very frustrating as the treatment has become part of our daily routine now and we are not seeing results until now. Hmm........are we not patient enough? Can God show me some directions......

This is what Jia Kenn usually does when he's having acupuncture treatment :) haha .... let's maintain our high EQ like JK does!

My First Pair of AFO!

Ha, didi has finally got his first pair of AFO, as expected, he was rather uneasy when it was first put on him. Anyway, we were not very happy about the design as it looks too plastic for us. It wasn't meant to be an eye-catching object actually, however, he receives lots of 'passionate' views wherever he goes. If you happen to see a boy wearing this, do not look at them attentively okay! I still think he's good looking ever. Beauty lies in the eyes of beholder :)